CMV Spotlight: Kimberly and Aubry
Welcome to Sunshine and Shattered Dreams! I am so glad to have you.
My world for the last few years has been advocating. The only story I have been sharing is mine, which is not the only one out there.
This year, I have decided to use my platform to shine a light on the warriors who fight CMV and the parents who advocate alongside them.
Samantha: Please introduce yourself and your child: Kimberly: Hi! My name is Kimberly, and my daughters name is Aubry. We share updates and our story on Facebook and Instagram.
Samantha: Before your Aubry’s diagnosis, had you ever heard of CMV? How did your journey begin? What was going through your mind?
Kimberly: No, neither my husband or I had ever heard of CMV. Our Journey actually started when I was about 28 weeks pregnant. We went in for a anatomy scan planning for nothing but good. Instead we come out of that office confused and overwhelmed. And had been shoved several information packets on CMV.
Samantha: Tell me a little more about her conditions associated with CMV. At her age, how many specialists are on your team?
Kimberly: Aubry is developmentally delayed. She has unilateral hearing loss in her left ear. She has nystagmus, astigmatism, and weak eye muscles. She wears a hearing aide , and glasses. She is 3.5 years old, and has 5
specialists on her team.
Pediatrician, Infectious Disease, Neurologist, Audiologist, Specialized Pediatric Eye Dr. Aubry also has Physical Therapist, (2) Speech Therapist, Vision/ Audio Therapist, and a Occupational Therapist that see her.
Samantha: What is your biggest fear for your Aubry?
Kimberly: My biggest fear for her is being excluded and looked at differently because of her CMV.
Samantha: What is your greatest hope for her?
My greatest hope is she continues to receive the support services she needs to exceed. I also hope she just stay happy, and enjoys her life.
Samantha: How do you take care of yourself? This journey can feel solitary, like you are in it alone even though you know there are many more out there fighting the same fight. Where do you turn to fill your cup?
Kimberly: I try to find at least 30 minutes to myself to exercise, watch tv, read, or lay down and do nothing. I always try to make sure I take care of myself because if I’m not in a good space, I can’t take care of Aubry. I usually go to my mom, or my husband. They are both great!
Samantha: A life filled with hardness can teach us some amazing lessons on love, kindness, empathy, and joy. What are some lessons that you have learned through your journey that might be helpful to a mother who has just begun?
Kimberly: Just love on your child, they are no different. They just want love, and to live life. I have also learned to be kind to myself, we live a busy life so my house isn’t always the picked up or organized. But we do a lot, and have a lot going on constantly. Soak in the small milestones and talk about how you are feeling. No one can help if you don’t talk.
Samantha: What is a quote, scripture, prayer, or piece of mediation that you would like to leave us with today? Kimberly: Psalm 139:14 “I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well”
Also, we really love this quote “Progress isn’t always measured on paper”
Kimberly, thank you so much for sharing with me. Aubry is a beautiful little girl and she has such a strong family behind her. I love the quote that "Progress isn't always measured on paper." When we go through therapy evaluations, IEP meetings, and things like that, those tests tell us what our child cannot do but it does not tell us what they can.
If you would like to follow Aubry's life, Kimberly has graciously provided her social media's. Please like and follow and share, help spread love and education.
Facebook: Aubry’s Story